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Rare Disease Advisory Council - 2022 Meeting Schedule

Rare Disease Advisory Council Meeting

2022-12-02 • 03:30 PM

video

Join the meeting online

phone

775-321-6111 (Phone Conference ID: 853 720 291#)

Documents 2022-12-02

Agenda
Agenda 12-02-22
10/06/2025 • .pdf
Minutes
Minutes 12-02-22
10/06/2025 • .pdf
Attachments
Attachment - 2022 Annual Report
10/06/2025 • .pdf
Attachment - Invitation Letter
10/06/2025 • .pdf

Rare Disease Advisory Council Meeting

2022-11-14 • 01:30 PM

video

Join the meeting online

phone

775-321-6111 (Phone Conference ID:

Documents 2022-11-14

Agenda
Agenda 11-14-22
10/06/2025 • .pdf
Minutes
Minutes 11-14-22
10/06/2025 • .pdf
Attachments
Attachment - 09-12-22 Minutes
10/06/2025 • .pdf
Attachment - Annual Report
10/06/2025 • .pdf
Attachment - Health Care Cost Growth Benchmark Presentation
10/06/2025 • .pdf
Attachment - R107-22P
10/06/2025 • .pdf
Attachment - R108-22P
10/06/2025 • .pdf

Rare Disease Advisory Council Meeting

2022-09-12 • 09:00 AM

live

Join the meeting online

phone

775-321-6111 (Phone Conference ID: 879 147 797#)

Documents 2022-09-12

Agenda
Agenda 09-12-22
10/06/2025 • .pdf
Minutes
Minutes 09-12-22
10/06/2025 • .pdf
Attachments
Attachment - Thielst Advocacy Teaching
10/06/2025 • .pdf
Attachment R107-22P
10/06/2025 • .pdf
Attachment - Thielst Resume
10/06/2025 • .pdf
Attachment - 06-20-22 Minutes
10/06/2025 • .pdf

Rare Disease Advisory Council Meeting

2022-06-20 • 03:00 PM

live

Microsoft Teams Meeting

Conference ID: 778 123 779#

phone

+1 775-321-6111

Phone Conference ID: 778 123 779#

Documents 2022-06-20

Agenda
Agenda 06-20-22
10/06/2025 • .pdf
Minutes
Minutes 06-20-22
10/06/2025 • .pdf
Attachments
Attachment - 05-27-22 Minutes
10/06/2025 • .pdf
Attachment - Annual Report
10/06/2025 • .pdf
Attachment - Approved bylaws
10/06/2025 • .pdf
Attachment - Letter of Interest
10/06/2025 • .pdf
Attachment - Logan Parker 2022 Bio
10/06/2025 • .pdf
Attachment - Nevada Medicaid and Proposed Policy Recommendations
10/06/2025 • .pdf

Rare Disease Advisory Council Meeting

2022-05-27 • 09:00 AM

live

Zoom Meeting: https://zoom.us/j/99945180379?pwd=T0liTEJaSndXK0hBaGozaUxVellEUT09

Meeting ID: 999 4518 0379

Passcode: 408252

phone

Join by Phone: +1 669 900 9128 US (San Jose)

Meeting ID: 999 4518 0379

Passcode: 408252

Documents 2022-05-27

Agenda
Agenda 05-27-22
10/06/2025 • .pdf
Minutes
Minutes 05-27-22
10/06/2025 • .pdf
Attachments
Attachment - SB175 Lupus Regulations
10/06/2025 • .pdf
Attachment - AB254 Sickle Cell Regulations
10/06/2025 • .pdf
Attachment - 02-14-22 Minutes
10/06/2025 • .pdf
Attachment Bylaws Revised
10/06/2025 • .pdf
Attachment - Craig Vincze resume
10/06/2025 • .pdf

Rare Disease Advisory Council Meeting

2022-02-14 • 10:00 AM

live

Zoom Online Meeting Link: https://zoom.us/j/93391022419?pwd=ZjNVcFpzakprUCtyTGlIQitSTkJwUT09

Meeting ID: 933 9102 2419

Passcode: 937646

phone

Join by Phone: +1 669 900 9128 US (San Jose)

Meeting ID: 933 9102 2419

Passcode: 937646

Documents
2.14.2022 RDAC Agenda
agenda • pdf
5.19.2021 RDAC Legislative Subcommittee Meeting Minutes DRAFT
attachment • pdf
6.9.2021 RDAC Educational Subcommittee Meeting Minutes DRAFT
attachment • pdf
9.30.2021 RDAC Educational Subcommittee Meeting Minutes DRAFT
attachment • pdf
10.20.2021 RDAC Meeting Minutes DRAFT
attachment • pdf
Save the Date Flyer
attachment • pdf
2.14.2022 RDAC Meeting Minutes
minutes • pdf

Documents 2022-02-14

Agenda
Agenda 02-14-22
10/07/2025 • .pdf
Minutes
Minutes 02-14-22
10/07/2025 • .pdf
Attachments
Attachment - Save the Date Flyer
10/07/2025 • .pdf
Attachment - 10-20-21 Minutes
10/07/2025 • .pdf
Attachment - 09-30-21 Minutes
10/07/2025 • .pdf
Attachment - 06-09-21 Minutes
10/07/2025 • .pdf
Attachment - 05-19-21 Minutes
10/07/2025 • .pdf