NV.gov
Rare Disease Advisory Council
2024-12-06 • 09:30 AM
Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC
phone
+1 (775) 321-6111 Phone Conference ID: 447 481 106#
Documents 2024-12-06
Agenda
Agenda 12-06-24
Posted 10/03/2025
•
.pdf
Minutes
Minutes 12-06-24
Posted 10/03/2025
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.pdf
Attachments
Attachment - 10-04-24 Minutes
Posted 10/03/2025
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.pdf
Attachment - 2025 NPA Policy Proposals Two proposals
Posted 10/03/2025
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.pdf
Attachment - Advancing Rare Disease Advocay in Nevada Report
Posted 10/03/2025
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.pdf
Attachment - Annual Report 2024
Posted 10/03/2025
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.pdf
Attachment - Madison Bowe Resume
Posted 10/03/2025
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.pdf
Attachment - Ms. Bowe Interest Letter
Posted 10/03/2025
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.pdf
Attachment - Nevada Pharmacy Alliance 2025 Legislative Goals
Posted 10/03/2025
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.pdf
Attachment - New Member Welcome Packet
Posted 10/03/2025
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.pdf
Rare Disease Advisory Council - Subcommittee Meeting
2024-11-01 • 09:30 AM
Join TEAMS: Meeting ID: 231 435 154 925 Passcode: akGH6i
phone
+1 (775) 321-6111 Phone Conference ID: 549 684 759#
Documents 2024-11-01
Agenda
Agenda 11-01-24
Posted 10/03/2025
•
.pdf
Minutes
Minutes 11-01-24
Posted 10/03/2025
•
.pdf
Attachments
Attachment - Annual Report 2024
Posted 10/03/2025
•
.pdf
Attachment - Strategic Plan
Posted 10/03/2025
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.pdf
Rare Disease Advisory Council
2024-10-04 • 09:30 AM
Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC
phone
Join by Phone: +1-775-321-6111 Phone Conference ID: 447 481 106#
Documents 2024-10-04
Agenda
Agenda 10-04-24
Posted 10/03/2025
•
.pdf
Minutes
Minutes 10-04-24
Posted 10/03/2025
•
.pdf
Attachments
Attachment - 09-06-24 Minutes
Posted 10/03/2025
•
.pdf
Attachment - Annual Report 2024
Posted 10/03/2025
•
.pdf
Attachment - Nevada Cancer Plan Presentation
Posted 10/03/2025
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.pdf
Rare Disease Advisory Council
2024-09-06 • 09:30 AM
Join TEAMS: Meeting ID: 292 281 778 59 Passcode: Hu4vgp
phone
Join by phone:1-775-321-6111 Phone Conference ID: 345 641 736#
Documents 2024-09-06
Agenda
Agenda 09-06-24
Posted 10/03/2025
•
.pdf
Minutes
Minutes 09-06-24.pdf
Posted 10/03/2025
•
.pdf
Attachments
Attachment - 04-05-24 Minutes
Posted 10/03/2025
•
.pdf
Attachment - 06-07-24 Minutes
Posted 10/03/2025
•
.pdf
Attachment - Dr. Chavda CVAUG 2024
Posted 10/03/2025
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.pdf
Attachment - Interest Letter Dr. Chavda
Posted 10/03/2025
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.pdf
Attachment - Rare Disease Program Overview
Posted 10/03/2025
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.pdf
Attachment - Target Cancer introduction
Posted 10/03/2025
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.pdf
Attachment - Verena Samara CV
Posted 10/03/2025
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.pdf
Attachment - Verena Samara letter of interest
Posted 10/03/2025
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.pdf
Documents 2024-06-07
Agenda
Agenda 06-07-24.pdf
Posted 10/03/2025
•
.pdf
Minutes
Minutes 06-07-24
Posted 10/03/2025
•
.pdf
Attachments
Attachment - 04-05-24 Minutes
Posted 10/03/2025
•
.pdf
Attachment - Newborn Screening Program
Posted 10/03/2025
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.pdf
Rare Disease Advisory Council
2024-04-05 • 09:30 AM
Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC
phone
Join by phone:1-775-321-6111 Phone Conference ID: 447 481 106#
Documents 2024-04-05
Agenda
Agenda 04-05-24
Posted 10/03/2025
•
.pdf
Minutes
Minutes 04-05-24
Posted 10/03/2025
•
.pdf
Attachments
Attachment - Melissa BP Resume
Posted 10/03/2025
•
.pdf
Attachment - NNCCF Action Days of Help, Hope, Courage
Posted 10/03/2025
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.pdf
Attachment - PAMELA WHITE Resume
Posted 10/03/2025
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.pdf
Rare Disease Advisory Council
2024-02-02 • 09:30 AM
video
Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC
phone
Join by phone:1-775-321-6111 Phone Conference ID: 447 481 106#
Documents 2024-02-02
Agenda
Agenda 02-02-24
Posted 10/03/2025
•
.pdf
MInutes
Minutes 02-02-24
Posted 10/03/2025
•
.pdf
Attachments
Attachment - Jennifer Millet Resume
Posted 10/03/2025
•
.pdf
Attachment - Nevada RDAC Presentation
Posted 10/03/2025
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.pdf
Attachment - 02-020-24 Draft Meeting Minutes
Posted 10/03/2025
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.pdf
Attachment - Drug Utilization Board Presentation
Posted 10/03/2025
•
.pdf
Attachment - Georgene Glass CV Resume 2023
Posted 10/03/2025
•
.pdf
Rare Disease Advisory Council - Subcommittee Meeting
2024-01-05 • 09:30 AM
Join TEAMS: Meeting ID: 231 435 154 925 Passcode: akGH6i
phone
Join by phone:1-775-321-6111 Phone Conference ID: 549 684 759#
Documents 2024-01-05
Agenda
Agenda 01-05-24
Posted 10/03/2025
•
.pdf
Minutes
Minutes 01-05-24
Posted 10/03/2025
•
.pdf