NV.gov
Rare Disease Advisory Council (RDAC) - Main Council Meeting
2025-08-01 • 09:30 AM
Join Teams Meeting
Meeting ID: 237 259 557 090 - Passcode: Mn3AU6jM
Phone:
1 (775) 321-6111
Conference ID: 728 234 817#
Documents 2025-08-01
Agenda
Agenda 08-01-25
10/03/2025
•
.pdf
Minutes
Minutes 08-01-25.pdf
11/04/2025
•
.pdf
Attachments
Attachment - Lenmeldy-USPI-FDA-03-18-2024
10/03/2025
•
.pdf
Attachment - Medical Outreach Presentation
10/03/2025
•
.pdf
Attachment - Metachromatic Leukodystrophy Presentation
10/03/2025
•
.pdf
Attachment - Survey Summary Report 2026-2027
10/03/2025
•
.pdf
Attachment Minutes 06-06-2025
10/03/2025
•
.pdf
Rare Disease Advisory Council (RDAC) - Subcommittee Meeting
2025-07-11 • 09:30 AM
Join TEAMS: Meeting ID: 245 387 510 276 Passcode: oJ37EW9u
phone
+1 (775) 321-6111 Phone Conference ID: 728 234 817#
Documents 2025-07-11
Agenda
Agenda 07-11-25
10/03/2025
•
.pdf
Minutes
Minutes 07-11-25
10/03/2025
•
.pdf
Attachments
Attachment - Survey Summary Report 2026-2027 07-11-25
10/03/2025
•
.pdf
03-25-25 Minutes
10/03/2025
•
.pdf
Rare Disease Advisory Council (RDAC) - Main Council Meeting
2025-06-06 • 09:30 AM
Join TEAMS: Meeting ID: 237 259 557 090 Passcode: Mn3AU6jM
phone
+1 (775) 321-6111 Phone Conference ID: 174 472 602#
Documents 2025-06-06
Agenda
Agenda 06-06-25
10/03/2025
•
.pdf
Minutes
Minutes 06-06-2025
10/03/2025
•
.pdf
Attachments
Attachment - 02-07-25 Minutes
10/03/2025
•
.pdf
Attachment - 04-04-25 Minutes
10/03/2025
•
.pdf
Attachment - 06-2024 Evans William
10/03/2025
•
.pdf
Attachment - Craig Vincze resume
10/03/2025
•
.pdf
Attachment - Letter of Interest W Evans
10/03/2025
•
.pdf
Attachment - Member Survey 2025
10/03/2025
•
.pdf
Attachment - Paul Niedermeyer Resume
10/03/2025
•
.pdf
Attachment - Thielst resume
10/03/2025
•
.pdf
Rare Disease Advisory Council (RDAC) - Main Council Meeting
2025-04-04 • 09:30 AM
Join TEAMS: Meeting ID: 237 259 557 090 Passcode: Mn3AU6jM
phone
+1 (775) 321-6111 Phone Conference ID: 174 472 602#
Documents 2025-04-04
Agenda
Agenda 04-04-25
10/03/2025
•
.pdf
Minutes
Minutes 04-04-25
10/03/2025
•
.pdf
Attachments
Attachment - Craig Vincze resume 04-04-25
10/03/2025
•
.pdf
Attachment - Evans William CV 04-04-25
10/03/2025
•
.pdf
Attachment - Letter of Interest W Evans 04-04-25
10/03/2025
•
.pdf
Attachment - Member Survey 2025 04-04-25
10/03/2025
•
.pdf
Attachment - Paul Niedermeyer Resume 04-04-25
10/03/2025
•
.pdf
Attachment - Recommended List of Rare Conditions for Dashboard
10/03/2025
•
.pdf
Attachment - Thielst resume 04-04-25
10/03/2025
•
.pdf
Minutes 04-04-25
10/03/2025
•
.pdf
Attachment - 02-07-25 Minutes 04-04-25
10/03/2025
•
.pdf
Rare Disease Advisory Council (RDAC) - Subcommittee Meeting
2025-03-07 • 09:30 AM
Join TEAMS: Meeting ID: 245 387 510 276 Passcode: oJ37EW9u
phone
+1 (775) 321-6111 Phone Conference ID: 728 234 817#
Documents 2025-03-07
Agenda
Agenda 03-07-25
10/03/2025
•
.pdf
Minutes
Minutes 03-07-25
10/03/2025
•
.pdf
Attachments
Attachment - Strategic Plan
10/03/2025
•
.pdf
Attachment- 11-01-24 Minutes
10/03/2025
•
.pdf
Attachment - 01-05-24 Minutes
10/03/2025
•
.pdf
Rare Disease Advisory Council (RDAC) - Main Council Meeting
2025-02-07 • 09:30 AM
Join TEAMS: Meeting ID: 237 259 557 090 Passcode: Mn3AU6jM
phone
+1 (775) 321-6111 Phone Conference ID: 174 472 602#
Documents 2025-02-07
Agenda
Agenda 02-07-25
10/03/2025
•
.pdf
Minutes
Minutes 02-07-25
10/03/2025
•
.pdf
Attachments
Attachment - 01-09-25 Nunes short Curriculum Vitae
10/03/2025
•
.pdf
Attachment - 12-06-24 Minutes
10/03/2025
•
.pdf