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Rare Disease Advisory Council - 2024 Meeting Schedule

Meetings to be scheduled.

Rare Disease Advisory Council

2024-12-06 • 09:30 AM

video

Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC

phone

+1 (775) 321-6111 Phone Conference ID: 447 481 106#

Documents 2024-12-06

Agenda
Agenda 12-06-24
10/03/2025 • .pdf
Minutes
Minutes 12-06-24
10/03/2025 • .pdf
Attachments
Attachment - 10-04-24 Minutes
10/03/2025 • .pdf
Attachment - 2025 NPA Policy Proposals Two proposals
10/03/2025 • .pdf
Attachment - Advancing Rare Disease Advocay in Nevada Report
10/03/2025 • .pdf
Attachment - Annual Report 2024
10/03/2025 • .pdf
Attachment - Madison Bowe Resume
10/03/2025 • .pdf
Attachment - Ms. Bowe Interest Letter
10/03/2025 • .pdf
Attachment - Nevada Pharmacy Alliance 2025 Legislative Goals
10/03/2025 • .pdf
Attachment - New Member Welcome Packet
10/03/2025 • .pdf

Rare Disease Advisory Council - Subcommittee Meeting

2024-11-01 • 09:30 AM

video

Join TEAMS: Meeting ID: 231 435 154 925 Passcode: akGH6i

phone

+1 (775) 321-6111 Phone Conference ID: 549 684 759#

Documents 2024-11-01

Agenda
Agenda 11-01-24
10/03/2025 • .pdf
Minutes
Minutes 11-01-24
10/03/2025 • .pdf
Attachments
Attachment - Annual Report 2024
10/03/2025 • .pdf
Attachment - Strategic Plan
10/03/2025 • .pdf

Rare Disease Advisory Council

2024-10-04 • 09:30 AM

video

Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC

phone

Join by Phone: +1-775-321-6111 Phone Conference ID: 447 481 106#

Documents 2024-10-04

Agenda
Agenda 10-04-24
10/03/2025 • .pdf
Minutes
Minutes 10-04-24
10/03/2025 • .pdf
Attachments
Attachment - 09-06-24 Minutes
10/03/2025 • .pdf
Attachment - Annual Report 2024
10/03/2025 • .pdf
Attachment - Nevada Cancer Plan Presentation
10/03/2025 • .pdf

Rare Disease Advisory Council

2024-09-06 • 09:30 AM

video

Join TEAMS: Meeting ID: 292 281 778 59 Passcode: Hu4vgp

phone

Join by phone:1-775-321-6111 Phone Conference ID: 345 641 736#

Documents 2024-09-06

Agenda
Agenda 09-06-24
10/03/2025 • .pdf
Minutes
Minutes 09-06-24.pdf
10/03/2025 • .pdf
Attachments
Attachment - 04-05-24 Minutes
10/03/2025 • .pdf
Attachment - 06-07-24 Minutes
10/03/2025 • .pdf
Attachment - Dr. Chavda CVAUG 2024
10/03/2025 • .pdf
Attachment - Interest Letter Dr. Chavda
10/03/2025 • .pdf
Attachment - Rare Disease Program Overview
10/03/2025 • .pdf
Attachment - Target Cancer introduction
10/03/2025 • .pdf
Attachment - Verena Samara CV
10/03/2025 • .pdf
Attachment - Verena Samara letter of interest
10/03/2025 • .pdf

Rare Disease Advisory Council

2024-06-07 • 09:30 AM

video

Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC

phone

Join by phone:1-775-321-6111 Phone Conference ID: 447 481 106#

Documents 2024-06-07

Agenda
Agenda 06-07-24.pdf
10/03/2025 • .pdf
Minutes
Minutes 06-07-24
10/03/2025 • .pdf
Attachments
Attachment - 04-05-24 Minutes
10/03/2025 • .pdf
Attachment - Newborn Screening Program
10/03/2025 • .pdf

Rare Disease Advisory Council

2024-04-05 • 09:30 AM

video

Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC

phone

Join by phone:1-775-321-6111 Phone Conference ID: 447 481 106#

Documents 2024-04-05

Agenda
Agenda 04-05-24
10/03/2025 • .pdf
Minutes
Minutes 04-05-24
10/03/2025 • .pdf
Attachments
Attachment - Melissa BP Resume
10/03/2025 • .pdf
Attachment - NNCCF Action Days of Help, Hope, Courage
10/03/2025 • .pdf
Attachment - PAMELA WHITE Resume
10/03/2025 • .pdf

Rare Disease Advisory Council

2024-02-02 • 09:30 AM

video

Join TEAMS: Meeting ID: 264 622 593 879 Passcode: bYt4VC

phone

Join by phone:1-775-321-6111 Phone Conference ID: 447 481 106#

Documents 2024-02-02

Agenda
Agenda 02-02-24
10/03/2025 • .pdf
MInutes
Minutes 02-02-24
10/03/2025 • .pdf
Attachments
Attachment - Jennifer Millet Resume
10/03/2025 • .pdf
Attachment - Nevada RDAC Presentation
10/03/2025 • .pdf
Attachment - 02-020-24 Draft Meeting Minutes
10/03/2025 • .pdf
Attachment - Drug Utilization Board Presentation
10/03/2025 • .pdf
Attachment - Georgene Glass CV Resume 2023
10/03/2025 • .pdf

Rare Disease Advisory Council - Subcommittee Meeting

2024-01-05 • 09:30 AM

video

Join TEAMS: Meeting ID: 231 435 154 925 Passcode: akGH6i

phone

Join by phone:1-775-321-6111 Phone Conference ID: 549 684 759#

Documents 2024-01-05

Agenda
Agenda 01-05-24
10/03/2025 • .pdf
Minutes
Minutes 01-05-24
10/03/2025 • .pdf